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Travelling with Enbrel Options
Paula-C
#1 Posted : Wednesday, January 23, 2013 3:56:14 PM Quote
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I said I would post about taking Enbrel abroad and how we managed to keep it at the right temperature so here it is.

It does say on the Enbrel drug information leaflet that the drug is OK out of the fridge for up to four weeks (not to be put back in the fridge at any time) as long as it is kept below 25 degrees (anyone who searching for information, please check if this advice is correct because it does change from time to time, information correct December 2012).

I phoned Manchester airport security and asked if I was allowed to take ice packs through security explaining that it was to keep temperature sensitive drugs cold and was told I could take as many ice packs with me that I needed.

I also emailed Monarch Airlines asking if I could take on board a small cool bag in addition to my normal carry on allowance and was told yes, as long as it was for carrying drugs only and it would have to be placed under the seat in front of me and I would have to have a letter dated no more that two weeks prior to flying from Consultant/GP about the drugs. With me just starting Enbrel I had requested a letter from my consultant a few weeks before so it wasn't a problem.

At check in they didn't ask for the letter and details of me taking the cool bag on board was on my booking details.

We set off for the airport at 2am and arrived in our apartment in Spain at around noon English time, so the drugs had been out of the fridge for about 10 hours and I don't think the temperature went above 5 degrees in all that time.

We purchased an insulated sandwich box........got it from Home Bargains and it didn't cost what it is on ebay.

http://www.ebay.co.uk/it...D160852304174%26ps%3D54

Asda flask http://direct.asda.com/A...,pd.html?cm_vc=PPCXSLTP

and a couple of boxes of these http://www.brendas.co.uk/product_p/5755.htm got these from Asda, they are small and fitted inside the flask and husband did manage to cut some in half.

The cool bag was put in the fridge the night before, we had bought some baby wipes from Home Bargains, 24 in a pack, they are in a light green packet. One was placed at the bottom of the cool bag, my husband taped together four packs to make a jacket to go around the Enbrel box and we then placed one on top of the Enbrel box when everything was placed in the cool bag. Husband said that we had to make sure that everything was tightly packed to help keep the temperature. Healthcare at home had sent me a digital thermometer (free of charge). It has a probe attached to a length of wire that is attached to the digital read out. The probe was put in the Enbrel box, next to the bottom of the syringes that contained the drug and the temperature gauge obviously was secured on the outside of the cool bag, it's got an alarm, so this was set at the minimum temperature we wanted the drug to go to and the maximum. With the temp. display being outside the cool box it was so easy to see and there was no unzipping the cool bag letting in hot air to keep checking the temperature. When everything was in place an ice pack was put inbetween the wipes and the side of the cool bag (found out before hand that if it was put straight into the middle of the cool bag the temperature went down too quickly). The rest of the ice packs went in the vacuum flask and off we went. I then had to keep an eye on it and moved the ice back to the middle of the bag when necessary. I think I only had to put some more ice packs in when we where on the plane. The rest of the ice packs were still frozen when we arrived in the apartment.

We took loads of spare ice packs with us because you have to plan flight delays or anything else that can happen to make your journey longer, rather take too many than not enough. We went on a flight Nov 2010, flight delayed around three hours, plane finally took off, me thinking we will be in Gibraltar in about three hours time................some seven hours later we finally got there.........that's another story!
Sue10
#2 Posted : Wednesday, January 23, 2013 4:06:45 PM Quote
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Location: Herne Bay Kent
Thanks Paula

We have been looking at going abroad and I was wondering how to deal with the Enbrel so your post was really helpful. Hope you had a good holiday.

Sue
Smile
sylviax
#3 Posted : Sunday, January 27, 2013 4:23:14 PM Quote
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Wow Paula - that's quite a tale! And obviously more to come. Well done for all your efforts and I hope you had a wonderful time there - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
suzanne_p
#4 Posted : Monday, January 28, 2013 4:25:54 PM Quote
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hi Paula,

your husband really did do well with a scientific approach to keeping the Enbrel at the right temperature, so top marks to him.

it's a brilliant explanation for people who will have to travel with it.

i think the Thermometer Heathcare at Home provide is fantastic, i found keeping an eye on the temp was so easy with the probe inside. i would recommend anyone travelling with an Anti-TFN to contact them for one.

hope you are still doing well on the Enbrel,

Suzanne x
Paula-C
#5 Posted : Wednesday, January 30, 2013 12:42:30 PM Quote
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Location: Nottinghamshire
Thanks Ladies for your replies.

Like Suzanne said the thermometer provided by Healthcare at home is very good. I already had the bog standard fridge thermometer but found this one to be excellent. You can see the temperature without having to keep opening the cool bag and it's also got the added bonus of the alarm. We used it in the apartment to keep a check on the temperature of the fridge as well.

I hope that no one thinks that we went to silly lengths to travel with the drug. I had only just started taking Enbrel, had only had three injections before I went away and I was going away for a month, I had the first six (well seven for me) week assessment a few days after I returned home. I really wanted the drug to be kept at it's best. If things had started to go pear shaped while I was away I wouldn't of known if it was due to the drug not being kept at the right temperature. We have just booked a week away over Easter, I will be more established on the drug then and if things are still OK I think I will not bother with the cool bag, don't think one injection would make much difference.

I was told by the second nurse who came to watch me inject to just use two cans of pop. She said to keep both of them in the fridge along with the sandwich cool bag the night before. Put one can at the bottom of the bag, drugs on top and then the other can on top. Drink or throw away the cans at security and then buy two more air side. Well we tried this and it only kept the temperature right for a short time, less than an hour. We also tried larger ice packs but found that these made the temperature too low.

Paula x
suzanne_p
#6 Posted : Friday, January 24, 2014 7:49:00 PM Quote
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i have bumped this Thread up for those asking
Paula-C
#7 Posted : Monday, January 27, 2014 3:14:10 PM Quote
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Hello....here I am still alive and kicking I do sometimes pop on the forum and read up on how everyone is doing and seen that my thread's been bumped up.

We do it slightly different now, couldn't find the hand wipes in Home Bargains so we now line the cool bag with a dampened towel (placed in a plastic bag). Found this to be just as good at keeping the temperature right. Everything done the same as before and placed in the fridge the day before.

I did see this on another forum and wondered about getting one, but the method that we use works OK so didn't bother.

http://www.coolicebox.co...cebb6b11bed3d3068477c28

I've fly about three times a year and haven't yet had any problems when taking ice packs through security. Just make sure that you have all the relevant paperwork with you about the drug......I have a letter from my consultant explaining about MTX not being able to go through the scanner and that Enbrel is temperature controlled, also letters about the two drugs from Health Care At Home. I also email the airline with booking ref. number and ask about the extra carry on bag and tell them that it will contain syringes, I then print off their reply and take it with me just in case. I did read on here a few years ago that Jet 2 wouldn't let someone take their syringes onboard the plane, this happened when she was at the airport.

Paula xx
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